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Auto-Injectors and Action Plans

What is an auto-injector?

What is an auto-injector

An auto-injector is a medical device used to treat anaphylaxis. In Australia we currently have one type of auto-injector called an EpiPen®.
An EpiPen® contains a single, pre-measured does of adrenaline (epinephrine) and has been designed to be given by non-medical people such as parents, teachers, grandparents, older children and the patient themselves (if they are well enough
to do so.) Adrenaline works quickly to reverse the symptoms of anaphylaxis. Adrenaline is a short-acting drug and the effects can wear off quickly. A second dose can be given after five minutes if there has been no improvement.

A link to guidelines in Australia

There are two types of EpiPen®.
*EpiPen® Jr (0.15 mg) is recommended for children between 10 and 20kg

*EpiPen® (0.3 mg) is recommended for children and adults over 20kg

* These dosage recommendations are based on expert opinion regarding recommended dose for weight and clinical trials of injected adrenaline in children, which is currently at slight variance with the product information leaflet.

Further information

In other countries they have the following auto-injectors EpiPen® – Anapen® – Auvi-Q™ – Jext® – Allerject™ – Adrenaclick® – Twinject® and Emerade®

Further Information for our New Zealand Food Allergy Friends

EpiPens are not funded in NZ. Allergy NZ have been successful in getting the ACC scheme (Accident Compensation Corporation a government programme unique to NZ) to accept claims for anaphylaxis.

Contact Allergy New Zealand Inc for information about ACC claims for anaphylaxis:

T. 0800 34 0800 or www.allergy.org.nz/anaphylaxis

ASCIA anaphylaxis e-training

ASCIA has designed an anaphylaxis e-training course for anaphylaxis education throughout Australia and New Zealand. It has been designed to be used by parents, friends, students, patients, work colleagues and carers.

The course is available free of charge at https://anaphylaxis.ascia.org.au

What is an Action Plan

Action Plan

An Action Plan is designed to help you mange an Allergic Reaction giving you step-by-step guidelines of recognising and treating an allergic reaction. ASCIA also have action plans to manage other allergic conditions such as Allergic Rhinitis, Eczema and Fpies. Your Action Plan should always be kept with your EpiPens®.

Reporting a reaction

Reporting a Reaction

Clink here

Thai’s Story

The real Thai had his first reaction when he was seven. Thai had an anaphylactic reaction to milk.

His symptoms played out very differently from his past reactions. There wasn’t a single hive on his body. Thai learned how his body could react and how it could be different each time. He shares his story as he wants others to learn from his experience and know that the EpiPen is nothing to fear.

WATCH HIS STORY BELOW

Thai and mum in hospital

Thai and Mum in hospital

Changes to instructions on EpiPen® administration 13 June 2017

The devices have not changed, just the instructions on the label, which now include:

  • Reduced injection time from 10 to 3 seconds – this is based on research confirming delivery of adrenaline through the 3 second delivery time.
  • Removal of the massage step after the injection – this has been found to reduce the risk of irritation at the injection site.

A new short video featuring Dr Andrew Rochford, explaining the changes

 

Visit an Ambulance Station

 

A few months after Thai’s reaction we visited an open day at an ambulance station. He learnt about all the equipment the paramedics used and even got to turn the sirens on. This was a great way to help him process what had happened and would be a good place to visit before your child ever needs an ambulance ride.

 

Here are some images of what the real Thai discovered.

 

Making the siren work!

Inside the ambulance

Pulse Oximeter

The bed has seat belts and a chair for mum or dad

Having my blood pressure taken

Having my blood pressure taken

Check out when your local ambulance station is having their next open day.

 

It’s not just nuts that cause anaphylaxis

 

Let’s Talk Anaphylaxis campaign.

As part of this project we not only wanted to bring you the book but also to talk and share information about anaphylaxis.
We wanted to hear real stories from children and parents. Below are some food allergy friends brave enough to share their story with YOU.
Thank you to our young food allergy friends for sharing you thoughts and stories with us.

Please note these are personal views of our food allergy friends only. Any medical advice should always be sought from your child’s allergist.
If you or your child would like to either share your anaphylaxis story or be part of our Let’s Talk Anaphylaxis videos get in contact with us.

Thai’s First Ambulance Ride

Thai thought it may be helpful for others to see what his stay in hospital was like. Below are some pictures we took
once the real Thai was feeling better.

 

Ambulances have seat belts to make you feel safe. There is also a chair for mum or dad.

Ambulances have seat belts to make you feel safe. There is also a chair for mum or dad.

At first I didn’t feel very well but the nurses looked after me

At first I didn’t feel very well but the nurses looked after me

Then I started to feel better

Then I started to feel better

4 hours is a long time to hang around

4 hours is a long time to hang around

Mum remembered to grab Rabbie.

Mum remembered to grab Rabbie.

 

Did you recognise this image from the book? Hear the real conversation the brothers had.

Do you recognise this image from the book? Hear the real conversation the brothers had.

After 4 hours Thai was feeling much better and wanted to ring his brother Finn who was at a friends house. Not all children recover so quickly but we wanted others to see hospital is not a scary place and the doctors will help you feel better.

 

After Anaphylaxis

 

boys

The day after Thai’s reaction

GO OVER ANY CRISIS EVENT AND TALK ABOUT IT WITH YOUR FAMILY.

Debrief and check in with each family member after experiencing anaphylaxis. Discuss symptoms they experienced, and positive lessons they learned. Discuss emotions they may now have after experiencing such an event. Include other children in this discussion. It can be quite a shock seeing a sibling experience a life-threatening reaction and can stir many emotions and fears. Seek professional support.

action plan

THE AFTER SHOCK – your story

We have had 2 reactions in one month, one being an anaphylactic shock and the other an ambulance trip to the hospital and me giving the EpiPen to Arda. Arda is not the same child anymore. He is extremely angry, seems like he even has a temper and is extremely scared. At night he gets scared of the darkness, I cant leave him for a minute. His eyes are always on me. He asked me on a couple of nights if we should bring the EpiPen into our bed just in case!!! When he went to my brothers house, he asked me if there would be nuts on the floor again. He keeps looking in his medical bag to see if everything is in there. This breaks my heart, as all this thinking is way too much for a 3.5 year old.
Finally the first time in 2 months Arda has gone to bed without me. It’s been a very tiring 2 months and up until this week he wouldn’t play in our garden without me, wouldn’t sit in the lounge without me, leaving him for seconds only started working this week. Tonight was his first night he slept without me and didn’t even call me next to him. We have been taking him out heaps, which has helped. We have been reading more than usual and he has been talking to his almost 2 year old sister about food allergies.
He never ever takes food from the ground anymore. When we are out and he wants an ice cream, he asks me if it is safe and has no egg in them (he is such a darling)… so hopefully in the next few days we may have more changes, I must say … it is all about patience!

PRACTICE WITH A TRAINER EPIPEN

count to 1-2-3
Regular practice with a trainer EpiPen will help you and your family feel confident if the need should ever arise and you need to use the real thing. You can also practice on an orange with expired pens. An important tip to remember is not to store your trainer pen with the real thing!

 

epipen practice

epipen practice

This page is still under construction, check back soon to see what is new!

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What people say about us

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‘Danger food’ has been a clear and friendly term that the girls have really understood from your books thank you!

(age 2 & 4)

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‘Great pictures and excellent level of language has been used, every single night he chooses these books for bed time stories.’

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‘If we are going out and returning home late (7pm) the kids take their bedtime stories with them and guess what 🙂

yes a Thai is with us like an epipen’

(age 4)